the-crane-dance:

#NoShameDay

I have Ehlers Danlos syndrome / joint hypermobility syndrome, degenerative disc disease with 3 slipped discs, and fibromyalgia. I use a cane all the time to get around as my joints are unstable and weak and the pain makes me unbearably fatigued. Today I am pretty I much chair bound from pain, fatigue and knee pain but just 6 months ago I was a fully active dance teacher and performer.

My life has changed immeasurably but this post is to say that I am not ashamed of being disabled. The spoonie community is so opening and caring and even though my life isn’t going to take the form I thought, I will still give my all to it.

End disability shame – canes, wheelchairs or invisible illnesses – you are all so worthwhile and loved.