My name is Jessica and I have 3 scary diseases that make life a little hard.
Melanoma (very aggressive skin cancer) was the first one to crop up. It runs in the family. I successfully battled it for 6 months. I still have to be careful, but in all honesty it wasn’t so bad! I have been completely clear for over 3 years now!
Stage 3 Endometriosis. I have failed all treatments. It isn’t cancer, but honestly hurts way more than Melanoma ever did. It has spread to my diaphragm and is creeping up my spine. This is something that doesn’t usually happen with this disease so doctors don’t know what to do with me. There is no cure for this.
Narcolepsy. Yeah laugh all you want. It’s a little funny when I sleep mid-sentence or when i’m eating. But it’s also very scary. I have fallen asleep in the bathtub face down. Crushed my ears and cheeks on marble. Suffocated. It’s currently untreated because of all the hype trying to get my Endo under control.
When I had the head scarf and wheelchair people stared at me and I wanted to hide. Now that I look normal I wish someone would see that i’m hurt and come help. Whether your disease is visible or invisible things are hard.. Mental or physical you’re going to struggle. I think i’ve learned that the key is in the adjustment. It’s ok to mourn what you miss or will never have because of your condition. Feeling uncomfortable with what’s happening to you is a good thing. Be cranky about it, throw a fit, get angry, bitter, sad. Because you have a lot on you’re plate and not a fuck left to spare.
Broke Bohemian 